Imagine being a pediatrician who treats only very, very sick children. Many will live; and many will die. And as a physician you realize that, while you can help, you do not decide. No matter how brilliant you are, your tools are limited. Despite the arsenal of medical technology at your disposal, in many cases you are forced to recognize that medicine is still an infant science. Often, you must rely on intuition– barely articulate knowledge that comes with long experience. And, even then, sometimes you won’t be able to save your patient –a child who hasn’t yet had a chance to live.
I can’t imagine a harder row to hoe—except to be the parent of a child in a Pediatric Intensive Care Unit (PICU).
In Your Critically Ill Child: Life and Death Choices Parents Must Face, Dr. Christopher Johnson, co-founder of the Mayo Clinic’s PICU in Rochester, Minnesota manages to address both audiences: parents and physicians.
Ostensibly, the book is aimed at parents. But I would urge any doctor who treats seriously ill or injured children to read it. Johnson, who has practiced pediatric intensive care for twenty-five years, offers a window on the parents’ world, and essential advice on how to collaborate with them.
The first tale focuses on Robert, a healthy five-year-old who suddenly and mysteriously lapses into a disoriented and ultimately hallucinatory state. “By the time he arrived at the PICU he was agitated and combative. He could not recognize his mother. By that afternoon, he was developing all the signs of fast developing acute liver failure. “
