The newest edition of Health Affairs includes the story of Michelle Mayer, a patient whose odyssey seems to validate consumer-driven medicine—at least on the surface. But a closer look reveals that Mayer’s tale is no consumerist parable; in fact, it’s a great example of consumer-driven medicine’s shortcomings as a model for health care.
Mayer’s Story
At first glance, Mayer’s story seems to jibe with the ethos of consumer-driven medicine, with a well-informed, assertive patient cycling through obstinate doctors until she finally receives care that she felt was appropriate. The journey begins twelve years ago, when Mayer—a research assistant professor at the University of North Carolina School of Public Health—noticed swelling in her hands and was found to be producing a specific antibody associated with scleroderma, an incurable chronic autoimmune disease. Though Mayer “truly believed that [she] had scleroderma,” doctors diagnosed her with a less serious condition called Raynaud’s phenomenon.
But over the next year, Mayer began to experience symptoms consistent with scleroderma, like sluggishness, hardened skin, and uncontrollable itching. When she finally sought out a new rheumatologist, he confirmed that she did indeed have scleroderma. Irate that her passivity had contributed to the misdiagnosis of her condition, the then-newly graduated Mayer “put [her] new Ph.D. in public health to good use, devouring the medical literature on scleroderma.”