At last, someone is announcing a Health Information Technology (HIT) initiative that opens the door to efficient, secure IT systems that will be able to talk to each other nationwide. At some point in the not-too-distant future, if you live in Pennsylvania and are in a terrible car accident in California, a Kaiser hospital on the West Coast will be able to tap into your medical records at Geisinger and capture information about your medical history, allergies to certain medications, and other critical information in less than a minute.
Already, thanks to the steps that Kaiser Permanente in California has taken, if you live in the San Diego area, are admitted to a Veterans Administration (VA) hospital, and visit your Kaiser physician when you are discharged, with your permission, he can view your VA records, finding all of the information he needs about results from tests done at the VA hospital, what drugs VA doctors prescribed, and recommendations for follow-up treatment.
Who is finally creating a model that could serve as a prototype for a rational HIT system nationwide?
Our government in Washington? Well, no. When the electronic medical record (EMR) revolution began, politicians in Washington decided to leave it to “the market to decide” how to implement Health IT. In our current system, for-profit vendors compete for business, and hospitals and doctors have wound up with a hodge-podge of systems that cannot communicate with each other. In some hospitals, the IT in the ER isn’t able to talk to a department on the third floor.
What about forward-looking corporations such as GE? Back in 2009 the company that Jack built announced that it was creating a new unit, eHealth, to pursue the business opportunity presented by the challenge of making sure that digital health records “flow seamlessly and securely among labs, clinics, hospitals, doctors’ offices and patients.” But no, GE is not on the cutting edge of this movement. Neither for-profit corporations nor our federal government have taken the lead.
The Care Connectivity Consortium
Instead, five of the nation’s most innovative non-profit health systems—Geisinger Health System (Pennsylvania ), Kaiser Permanente (California ), Intermountain Healthcare (Utah ), Group Health Cooperative (Washington) and the Mayo Clinics in Minnesota, Florida and Arizona—have just announced that they have joined together to create the Care Connectivity Consortium. They are linking their IT systems so that they can send electronic medical records to each other; the first data exchange is scheduled to happen next year. Suddenly, millions of patients will find themselves in the 21st century’s “medical information age.” Although the five are located in different parts of the country, they treat patients from all 50 states.
“It turns out this was a good environment to do this,” Dr. Jack Cochran, executive director of the Permanente Federation of Kaiser Permanente, Kaiser’s national physicians’ organization, told me yesterday: “We have good IT on all sides—and eager leadership. We were all early adopters of IT, on the leading edge in terms of automating and putting in electronic health records, and we have been learning together and talking to each other. We have shown that it could be done. Ultimately we should be able to create a model for national distribution of information.”
“Learning together and talking together”—these non-profit groups are able to lead because instead of competing with each other, they have been sharing information. As the Affordable Care Act recognizes, we will be able to lower costs and lift quality only if those who provide and distribute care stop vying for market share, and begin collaborating. Over time, newly formed accountable care organizations are likely to join the Consortium’s network, along with other hospitals and physician groups.
To be fair, under the Obama administration The Office of the National Coordinator and National Health Information Network has laid out standards for data sharing. “But those standards are voluntary,” observes Dawn Milliner, Chief Medical Offers of the Mayo Clinic in a video press briefing. “Right now every state has its own rules and regulations. Every one requires different kinds of patient consent and each group is using a different approach to the type of data they share, making this very complicated for any health system that cares for patients in more than one state”.
It’s worth noting that these five organizations did not wait for financial incentives before beginning the task of coordinating their systems. They are funding the Consortium themselves. Going forward, small groups that lack their resources will be able to benefit from their trail-blazing work.
Kaiser Connects with the VA
Kaiser pioneered interconnectivity by hooking up with the VA in Southern California, Cochran explains: “What we are doing in the consortium is very similar to an interoperability pilot involving Kaiser and the VA in the San Diego area that we started last year. It’s now up and running.”
But what about the critics who have said that VA’s VistA system is too old-fashioned and clumsy to be adapted to other systems? This is the excuse the Department of Defense (DoD) used for not adapting VistA when developing IT for its own health care program. Instead, it reached out to the for-profit market, creating a separate system that cannot communicate the VA.
“There is a lot of uncertainty and mythology out there,” says Cochran. “People claim, ‘This is too hard.’ ‘This is s impossible.’ It is what it is. This is frontier work.”
“We’re hoping to create a prototype,” Cochran adds. “We need standards for privacy and interoperability. If I have an electronic health record and don’t happen to be in the right state or the right hospital, those records might as well be buried in the ground. Ultimately what we are doing should become a model for more national distribution.” But he makes it clear that information will be distributed only with the patient’s permission.
In other developed countries, governments or a group of medical experts laid out standards early on in the process of adopting electronic medical records. In the U.S., by contrast, many health care providers will find themselves trying to figure out how to build bridges between incompatible systems that they have already purchased. Why did we decide to let the invisible hand of the market determine which systems hospitals and physicians’ choose, depending on which vendor has the best sales pitch—or the strongest relationship with a supposedly unbiased IT consultant?
“Well, we’re are the land of the free and the home of the brave, aren’t we?” Cochran replies, with a soft chuckle. “People in developed countries around the world do not find universal coverage of the country’s citizens a controversial idea,” he adds. “We do.”
The Future of Reform
I have long argued that while many for-profit insurers just won’t be able to survive under the rules and regulations of the Affordable Care Act, non-profits like Kaiser will become more and more important. The fact Geisinger, Group Health Cooperative and Kaiser are part of a single EMR network will make their insurance plans that much more attractive, especially to patients who might want to travel to the Mayo Clinic to see a specialist. In the years ahead, I wouldn’t be too surprised to see other non-profit insurers join the consortium, along with other integrated medical systems.
Lately, I have begun to think that whatever happens in Washington, health care reform is already unfolding on the ground. (See “Health Care Reform is Becoming a Reality” below.) The Care Connectivity Consortium serves as a brilliant example of what I have in mind. The nasty and ultimately boring beltway battle, pitting tea-party conservatives who loathe reform against tepid defenders who seem unwilling or unable to really stand up for reform is becoming increasingly irrelevant.
Conservative dreams of killing Medicare while strangling rational reform are just that—their dreams, our nightmares—but not likely to become reality. Out there, in communities throughout the country, our health care system is beginning to transform itself, from within. This is not happening everywhere. And even in places where reformers are committed, they will not always be successful.
But, as Cochran says, “we’re making a dent.” And this is just the beginning.
This is interesting since Kaiser, Mayo, and the VA all use different systems. Has someone finally developed software that allows Epic, VistA, Mayo’s in house developed system, and others to communicate with each other? If so, that is good news, since it would mean that many other systems could easily join in and share information.
I was just talking with the physician who is the head of the EMR program at Essentia (a large health care system in Northern Wisconsin, Northern Minnesota, and North Dakota,) and he said that as of then he was able to share information with most other large systems in the Upper Midwest, but not with Mayo.
I am familiar with a state data program that collects hospital inpatient data for research and quality reporting. The data are submitted, errors are identifed and corrections are made (e.g. diagnosis does not match with patient gender). Seems natural that as EMRs become standard they will become the source for this data. So what happens when errors are identifed at that point? Does that mean that the EMR system for that facility is flawed? Shouldn’t it catch nearly all errors automatically especially if clinicians are relying on it for information in diagnosing and treating patients? No one seems to be talking about this much lately. See the following article for more:
http://www.fierceemr.com/story/fda-onc-clash-over-emr-safety-issues/2010-08-05
Finally, some good news. And wouldn’t you know, it’s from the not-for-profit sector! And “these five organizations did not wait for financial incentives before beginning the task of coordinating their systems. They are funding the Consortium themselves” gives me a warm feeling. I’m so very tired of prating about “competition” and worship of the marketplace. The GOP/Ryan plan to abandon Medicare is too depressing for words. I was in need of something positive.
Original investigations on Kaiser Permanente fraud, waste, abuse and mismanagement are posted on YouTube at http://www.youtube.com/watch?v=v0h7tUymj2Y and http://www.hmohardball.com.
Robert D. Finney, Ph.D.
Pretty great thing to finally happen! Although, this raises the question of privacy and information breach. With an open record, there might be cases where it can be used for evil ends.
Everyone–
Thanks for the comments–
I am tied up writing an issue brief, but will reply this week-end.
Maggie
Mike K., Pat S., John, Robert, Lauren
Mike– Thanks for the link.
I agree with the article that the FDA shoud be involved in approving EMR systems, their safety and accuracy.
That said, in this particular situation the systems that are being linked (from Geisinger, Inermountain et. al.) are among the very best in the country. Most were developed by doctors, or with a great deal of input from doctors–in contrast to systems created by IT specialists who really don’t understand medical workflow.
This doesn’t mean that there are never glitches at these medical centers, but I have never read of EMR errors leading to patient deaths at any of these places.
At the same time, what I have read suggests that some EMR systems ARE seriously flawed, and may be hurting patients.
Pat S.–
It seems that Kaiser defintitely has figured out how to link up with the VA and that connection is working well, albeit only in a small geographic area.
The person I spoke to at Kaiser seemed sanguine that they over the next year, they would be able to achieve similar results in linking up with these other medical centers on a much larger scale.
I’m not an IT expert, but from what I have read, linking up with some systems may be much harder. . . Some software was developed with an eye to making it proprietary.
The groups involved in this consortium have some of the best HIT in the country–and they have the resources to invest in building bridges.
At the same time, I am very glad that they have taken the lead. What they are doing should set a high bar and a good model for what needs to be done going forward.
I am assuming that they will share what they are learning about interoperability with others.
John–
I, too, was much in need of good news. I was so happy when I got the e-mail about this annoucement. . . . Best health care news I have rec’d in a while.
And I was impressed by Cochran (the person who I talked to at Kaiser.) It is easy to forget that there are extremely intelligent, experienced, patient-centered people out there who are in positions of power and are moving forward on reform.
Most of them hey don’t get a lot of press, but they are out there, working.
Robet–
Thanks for the link.
But it only tells me about one patient’s dispute with Kaiser. I’m not in a position to judge the merits of the patients’ claim (just don’t have enough information.)
But in general, in most places where Kaiser is available (Cal., Col, Hawaii, the Northwest, etc.) Kaiser is very popular with patients (as measured by market share and patient satisfaction surveys done by J.D.Powers when compared to other plans.)
Lauren–
Thanks for your comment.
The groups involved in this consortium have generally been very successful in protecting patient privacy. So this hook-up shouldn’t be a problem.
But you are right that as interoperability is expanded there could be a danger that privacy will be compromised. Not all systems are created equal.
And medical records could be used to discriminate against people–particuarly in employment.
At the same time, I would point out that there was much concern that when IT came to banking, there would be much fraud and theft. But ATMs have been operating successfully for years–with relatively few problems.
(The biggest danger is that someone will follow you into your bank lobby at night, and put a gun to your head while you’re taking money out of your ATM. Software glitches that let someone take your money out of your account are much,much rarer.)
This is a good sign that collaborative EMRs can be established between different institutions and IT programs. As a nurse, I see the enormous benefit that linking EMRs nationally has. The ease of accessing patients’ previous labs and diagnostic tests could speed diagnosis, and prevent unnecessary repeated tests. Similarly, medication reconciliation processes would be maintained much more simply and could help prevent medication overlaps, interactions, or even abuses. That being said, there is an increased potential for abuses to privacy and security. I would be interested to know how these agencies ensure HIPPA compliance. Enacting nationally linked EMRs provides a benefit for both patients and providers, but a tradeoff for potential risks to privacy. Just in the last few weeks, many of the largest corporations in the US experienced a breach of security through the company Epsilon. While the extent of the information accessed was limited to names and email addresses, this incident underscores the potential risk to digital personal data.
With proper safety and security, national EMRs could be a huge step in providing safer, less expensive, more efficient care.
Karen–
I agree, but think the companies involved in the coaition are very serious about privacy, and have the wherewithal to ensure it.
There were many concerns about privacy with the advent of the AMT, but it has proved secure — at least the vast majority of the public are comfortable with it.
And the 1099 Provision?